For long-time Center for Hospice Care (CHC) volunteer Roberta, her annual journey to Uganda has become a cherished tradition, reinforcing the deep and impactful partnership between CHC and the Palliative Care Association of Uganda (PCAU). Through her dedication, Roberta serves as a vital link between the two organizations, supporting programs that bring lasting impact to children and families in need.
In January 2025, Roberta embarked on her latest visit to Uganda, dedicating three weeks to supporting PCAU’s work, with her stay concluding on February 10. A highlight of her visit was once again her participation in the highly anticipated Road to Hope (RTH) Children’s Camp, an initiative that provides crucial support for vulnerable child caregivers, ensuring they have access to education, mentorship, and a strong sense of belonging) – a cornerstone of her trips. This year’s camp, themed “Growing Together in Love and Care,” took place from January 28–31, bringing together 45 out of the 73 children currently supported on the program, along with two RTH alumni. This gathering, which included children from across Uganda, introduced new experiences and rewarding moments that underscored the program’s far-reaching impact.
This year’s camp was held at a different location, adding to the excitement and adjustments for both staff and children. While past camps were easily accessible from the nearby village (in PCAU’s locality), this year’s site – a school converted into a camp during school breaks – required additional planning for transportation and accommodations. The transition sparked a mix of anticipation and concern. Dormitories were equipped with bunk beds, a contrast to what some were accustomed to. However, for many of the children, the setup mirrored their boarding school experiences, making the adjustment smooth.
Roberta played a key role in navigating these transitions, ensuring that both staff and children felt encouraged and supported. Although she initially had reservations about staying overnight, she balanced on-site engagement with commuting, fully immersing herself in the camp experience. The journey to camp was not without its hurdles. Transportation logistics proved to be a test of patience, as Kampala’s notorious traffic and last-minute adjustments created delays. A necessary tire change on the first day and the coordination of arriving children from far out districts tested everyone’s adaptability. Yet, amidst these obstacles, the energy of the children and their excitement for camp made every challenge worthwhile.
Throughout the camp, Roberta engaged in various activities, from assisting with sessions to brainstorming solutions for on-the-ground challenges. The children’s enthusiasm was intense, and the camp provided a much-needed space for them to share their stories, receive mentorship, and strengthen their aspirations. Seeing familiar faces and witnessing the growth of children she had known for years made the experience deeply rewarding for both Roberta and the children.
A cherished CHC undertaking is ensuring that each child on the RTH program receives a letter or card from their sponsor or a CHC staff person. These letters offer words of encouragement and personal support, fostering a connection between CHC, the children, and PCAU. The joy on the children’s faces upon receiving their letters is a testament to the power of these personal touches, inspiring them to continue striving toward their goals. They, in turn, put great effort into responding with appreciation. Mark Mwesiga (PCAU’s Executive Director) noted that Roberta’s presence at the camp represents the face of every child’s sponsor.
Additionally, this year’s camp introduced a new initiative – four volunteer mentors from different districts accompanied some of the children, actively participating in facilitating activities and discussions. Their involvement, a first for the program, significantly contributed to the camp’s success. These mentors provide ongoing support throughout the year, supplementing PCAU’s efforts and strengthening the support network for the children.
As the camp concluded, the transformative power of the RTH program was evident. The bonds formed, the stories shared, and the mentorship provided all contribute to a nurturing environment that supports these children in their educational and personal journeys.
Although the week was exhausting, Roberta found immense fulfillment in reconnecting with the children and witnessing the tangible impact of the program. The RTH camp remains a beacon of hope, ensuring that vulnerable child caregivers receive the education, mentorship, and care they need to become productive young adults.
Beyond the RTH Camp, Roberta’s time in Uganda was filled with other impactful activities:
- Extended RTH support visits: through Roberta’s lens, CHC gained deeper insights into the challenges faced by RTH families, guardians, and mentors – who significantly influence the RTH children and their futures. Their honesty, struggles, and commitment to the children bring hope for success.
- Advocacy efforts: Roberta assisted facilitating a day-long workshop piloting the newly developed Spiritual Care Assessment Tool, a resource designed to equip hospice workers, spiritual leaders, and trained spiritual care volunteers with tools for providing holistic care. She also attended meetings with key palliative care stakeholders to support PCAU’s advocacy and strategic initiatives.
- Educational support: while scheduling conflicts prevented engagement with Advanced Diploma in Palliative Care Nursing students, Roberta interacted with French-speaking doctors, nurses, and social workers participating in a three-week education program (the “2025 Francophone Palliative Care Initiator Course”) at Hospice Africa Uganda. She also met with Dr. Moses Muwanga, the Palliative Care Representative from Uganda’s Ministry of Health, to discuss the delivery of hospice services in home care. Her experiences provide insightful and reassuring perspectives on advancing palliative care services in Uganda.
With each passing year, the program evolves – tackling new challenges and embracing new opportunities. Thanks to the dedication of volunteers like Roberta, sponsors to the children and the support of CHC and PCAU staff, these children continue to receive not only an education but also the love and mentorship that will guide them toward a brighter future.